Precious Nicole Epilepsy Journey

The Cleveland Clinic

As some of you may know, my daughter Precious Nicole was diagnosed Focus Epilepsy having 30-50 seizures daily. She was also born with Turner Syndrome. At age 8 Precious started having Grand Mail Seizures and later started having Petite Mal. As an infant, she had one and a half kidney removed. She is now 31 years old.She has been living with a half kidney for over 30 years. I don't know of anyone else in the world that has lived that long with an half kidney. She has been to many hospitals (UMMC, Le Bonheur Children's Hospital), clinics, emergency rooms, on numerous medications,  tests - VIDEO EEG for seven days at the Cleveland Clinic in Cleveland Ohio, EEG, MRI, MEG, ECHO SPECT, CT, CT, etc. She has undergone the SEEG Surgery on June 10, 2021 and June 17, 2021 at the Cleveland Clinic in Cleveland Ohio and had the VNS surgery 6-21-2021. Linda Kay’s Book of Poetry was inspired by my Daughter Precious Nicole Epilepsy Journey for her cause.

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Glory to God
 


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